Utterly Meaningless » Blog Archive » CAN WE PLEASE MOVE ALONG?
  • CAN WE PLEASE MOVE ALONG?

    Filed at 6:34 am under by dcobranchi

    Yes, I understand that parents of kids diagnosed with autism are frustrated and upset and want answers. But the science is the science. And now the courts have spoken, too.

    Let’s spend our energies looking for the real causes of autism, instead of re-fighting lost battles.

    19 Responses to “CAN WE PLEASE MOVE ALONG?”


    Comment by
    JJ Ross
    February 15th, 2009
    at 10:01 am

    Amen.


    Comment by
    Lisa G.
    February 15th, 2009
    at 11:05 am

    For real, geez.


    Comment by
    Doc
    February 15th, 2009
    at 11:36 am

    I’d prefer the focus be on treatment instead of cause. The cause is probably no more preventable than many other neurological anomolies. Differences don’t have to be a negative. Children with aspergers and autism can and do function in society. Just ask the millions of those undiagnosed weird kids from our own childhoods. Like me. And I didn’t have any vaccinations.


    Comment by
    NMcV
    February 16th, 2009
    at 5:28 pm

    I’ve long wondered why so many parents of kids on the Autism Spectrum need to know what caused their kids to be on the Spectrum.

    The only answer I’ve come up with is that no one wants to admit that their kid inherited some gene or combination of genes. There’s apparently some need to blame someone else. “Not my fault, you made my kids this way.”

    If anyone’s got another idea on that, please let me know.

    Anyway, as Doc points out, it’s a waste of resources, when bright, able, college-educated Aspies can’t find jobs because no one is willing to learn to work with them.


    Comment by
    dcobranchi
    February 16th, 2009
    at 5:41 pm

    The cause is probably no more preventable than many other neurological anomolies.

    Perhaps. But we don’t know what we don’t know. Maybe a two-pronged approach would be best. If it’s genetic then we’ll know. If it’s environmental (even if the environment of the womb) we can work to minimize it.


    Comment by
    Sonia
    February 17th, 2009
    at 3:40 pm

    AMEN. I mean, afterall, the studies published are from legit, scientific research.

    It’s also really annoying hearing parents try to blame the most minute things for creating their child’s neurological disorder/deficeit. First it’s vaccines and then dyes for ADHD. ANNOYING.


    Comment by
    Rick
    February 17th, 2009
    at 5:00 pm

    Unfortunately, as long as the medical community and our society at large continues to try and find a single smoking gun, the science will always come back inconclusive. I believe these parents, but a better understanding of the environmental impacts that we subject our children to is the only way to unerstand what is happening. Many things in our environment have changed over the past couple of decades including contaminants in the air we breath, the water we drink, the food we eat and the vaccines we administer. I truely believe that autism is caused by an immune system malfunction due to some sort of impact that the child or fetus endured early on. Just look at the study published last month finding mercury in foods containing HFCS. I applaud these parent for bringing awareness to this issue because in my mind we don’t have it right. I believe some vaccines are needed in our world but not in the manner the US recommends, and I sure would never allow my children to receive a shot containing a mercury preservative. The same preservative that was outlawed in the former Soviet Union in the 1950’s. To me vaccines are part of the issue but not the whole issue and until we start to look at how our immune system is responding to the rapidly changing world around us we will always not find a significant scientific link. Sonia you should try to not be so presumptuous in your knowledge. Myself and these parent spend tireless hours researching and trying to get an understanding of what is happening and some day their efforts will be known as common knowledge.


    Comment by
    NMcV
    February 17th, 2009
    at 6:53 pm

    “Myself” and other parents have also spent time in research. But we are not falling for junk “science”, because it doesn’t help our kids.

    Here’s the best quote on the matter, from Slate:

    “An industry of hucksters, personal-injury lawyers, and clueless alternative-medicine practitioners has fed off of the desperation of parents of autistic children. ”

    slate....11156/


    Comment by
    Susan
    February 18th, 2009
    at 6:09 am

    The “science” is financed by the “pharmaceutical companies”. Give me some independent intelligent “science” and I’ll let it go. This comment is truly spoken from a woman who does NOT spend day in, day out with a stimming, screaming, flapping, compromised autistic chile. How very glib.


    Comment by
    dcobranchi
    February 18th, 2009
    at 9:03 am

    Right. You honestly believe that all of the many, many, many studies that have shown no correlation were paid for by Big Pharma?


    Comment by
    Rick
    February 18th, 2009
    at 10:01 am

    I think the big pharama companies take a keen interest so to speak when the ligitation reaches a national level and they apply their resources to the litigation as any big company or cooalition of companies would. So to some degree I believe these companies can influence a trial of this magnitude. However, they do not have the control over the many, dozens of studies conducted by independent, far less funded, groups that are backed by serious, intelligent, legitimate doctors and scientists; who find that this is a problem. So I take issue with the notion that every study that has been conducted has found no link, because that is not the case. Our society and our medical community need to start assessing what is happening in a broader sense and begin to investigate why our society is dealing with all of these new malfuncting immune system syndroms; autism, MS, chronic fatigue, fibromyalgia, the list is long. Studies show that these issues are not nearly as prevalent other places in the world, why are we suffering more? We are 26th !!!! in the world in child mortality. It would matter if the study was off by 50%, 13 th is terrible to considering our wealth. Again, I believe we need to look at what is happening in a broader context and step away from the ‘microscopes’ looking for that one smoking gun. As a scientist myself, I believe this type of case by case assesment of what can potentially be happening is always going to be inconclusive, because we are humans, not automobiles, and what works or does not work for one person will not necessarily work for another.


    Comment by
    JJ Ross
    February 18th, 2009
    at 12:58 pm

    What a word blizzard Rick, most unusual from a “scientist.” And your scientific point in all those “I believes” is –?


    Comment by
    Rick
    February 18th, 2009
    at 1:38 pm

    Stop looking for a single smoking gun is my point.


    Comment by
    JJ Ross
    February 18th, 2009
    at 6:07 pm

    How do you reconcile that (surely reasonable) point with all your apparently unscientific beliefs, about how you’d still never allow any vaccine with mercury because it was banned in the USSR in the 1950s, etc?

    My 13-year-old son got two vaccines today, for meningitis and a chicken pox booster. The pediatrician started to give me a little speech about how these was non-negotiable in his professional opinion — presumably gun-shy from past refusals — and I quickly assured him we were not vaccine-deniers, no need to defend the science or parental prudence of it all, to me.

    Then when we got home, I saw a local non-scientist homeschool mom (who if I recall correctly has children on the autism spectrum) make the same point on our local email list but with less “belief” and politics in the way:

    Politics aside — there is considerable evidence that autism does not occur at the time a child receives vaccines. Developmental milestones are usually being measured at the time the vaccines are given, so it is easy to think that the vaccines are the cause.

    The evidence of post-mortem brain studies show some brain cells are under-developed in individuals on the autism spectrum (tree cells and perkunje cells have been documented — pardon my spelling). These particular brain cells grow during the first trimester in utero! Tree cells and perkunje cells in individuals w/ autism seem to have stopped growing:

    The tree cells, which look like trees, w/ long trunks and many branches, make physical connections to different parts of the brain.

    When the tree cells are too short, they are literally unable to “connect” to areas further away; circuitous routes are often created by the brain, and circuitous routes slow down processing.

    The brain cell issue is just one issue of autism, which is a multi-faceted condition, possibly affecting many genes.

    OK–no problem if you’d like to continue the political debate…it’s researchers who’ll crack the case, not politicians, anyway.


    Comment by
    JJ Ross
    February 18th, 2009
    at 6:08 pm

    “these was”?? obviously I know better but my editing fingers lost track.


    Comment by
    dcobranchi
    February 18th, 2009
    at 6:35 pm

    You obviously meant “this was.” 🙂


    Comment by
    NMcV
    February 19th, 2009
    at 6:45 pm

    The “science” is financed by the “pharmaceutical companies”. Give me some independent intelligent “science” and I’ll let it go.

    You can start here:

    ncbi.n...880876

    This comment is truly spoken from a woman who does NOT spend day in, day out with a stimming, screaming, flapping, compromised autistic chile. How very glib.

    …huh…?


    Comment by
    JJ Ross
    February 20th, 2009
    at 12:49 pm

    Nancy McV, I finally got to read the whole thing and that Slate article IS good, start to finish. Thanks.


    Comment by
    JJ Ross
    February 20th, 2009
    at 1:35 pm

    Near the beginning of this TED video, a comic book artist tells the story of how his normally-sighted dad as a child was taken to view a solar eclipse and then lost his sight (along with his sister, who also had seen the eclipse) causing his mom to go to her grave with the guilty belief she was responsible. Seems obvious but — not.